Helen's Auto Immune memory
Our beloved Helen passed away on the 21st of June 2023 after a long fight with a rare mix of blood clotting disorder and auto-immune disease. Sadly auto-immune conditions are still widely unknown & complex to treat, taking the life of Helen too early, and the lives of many others.
She will be remembered for the courage, generosity, kindness & compassion she showed those around her. More than one person will feel the warmth of her socks and quilts to which she poured her heart and soul into.
Even in her last days, Helen was thinking of others, working on a quilt for loved ones whilst in hospital. We ran errands still getting fabric for her to finish the one last gifts she was working on. She did this all whilst in incredible pain.
She was always keen to understand her illness. Her doctors were constantly amazed at her knowledge, her depth of reading and understanding of current research. Her ability to converse in medical terms in regards to her conditions, therapy and various options was always a welcome trait to her doctors. She never stopped searching for answers and there are many more questions without answers when it comes to auto-immune conditions.
Dr Samuel Kim, a wonderful loverly professor of medicine, once told Helen that "We are in the blank pages of the manual. You are not in the text books". He worked tirelessly in the last years of Helen's life, and for that we are forever grateful. This page is created both in memory Helen, and for the fight that practitioners such as Dr Kim still continue.
Helen wants to fill in the unknown pages that so many still suffer from without understanding of what the cause is. She doesn't want other women or men to suffer as she suffered.
Your contribution to research into Sjogren's disease and associated
autoimmune disorders will one day lead to a cure.
We feel extremely blessed to have been part of Helen’s life. She will be sorely missed.
She lived a life of art and beauty.
With all our love the McGinnity family. ❤️